When the idea of a clinical trial was first mentioned to me I was horrified. Clinical trials are things people in college or jail sign up for to make money, and occasionally leave with flippers or hairy eyelids, right? Apparently not.
This one is called an "open label trial." "An open-label trial or open trial is a type of clinical trial in which both the researchers and participants know which treatment is being administered," according to Wikipedia. Basically this means no placebo. That was my main concern--I didn't want to be in pain and ill and receive a needle full of saline, you know? I want to know exactly what I am receiving, and what it is supposed to do. That's why I research things on Wikipedia. Ha.
I have to say, I have had this condition my whole life. I have tolerated it, and dismissed it. Ignored it, and pretended it is not as serious as it is. When people looked at me and said, "wow. I have never heard of it," I think it made me doubt that it even existed. The trial is giving me an opportunity to meet and talk to someone who actually HAS heard of it. Knows people who have it. Has TREATED people with it. I never thought I would be so excited to be a lab rat.
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