I was told to get a Medic Alert bracelet, and after putting it off for a week and a half, I ordered one today. I don't know why I have such a block against pursuing this stuff, it's such a simple thing to do...
The HAE society (Lois, to be specific) told me who to call and what to engrave and everything. Piece of cake, and now it is done. I hope it's cute. They have so many styles, I have a feeling it will be great.
Each of these little steps make me feel closer to comfort. Ever since the last ER visit I have been a little uncomfortable, unsettled. Yet every time Dr. Green calls me and tells me she learned something new, or talked to someone about treatment, it makes me feel a little more peaceful. I really look forward to the day when I really feel stable in my plan, when the idea of leaving town doesn't make me feel like I'm going to have a panic attack.
In the meantime, I use this as an excuse to play with the kids more, relax more, play more Scrabble on Facebook. I think today I'm cutting out early to take the kids to the beach--that should help my stress level, right?
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Great blog, MK. I'm glad you're doing this!
ReplyDeleteSeriously, I am going on line and getting my medic alert bracelet right now...thanks for doing this blog, it helps to hear someone else talk about the fear of the unknown that comes with a chronic condition--it sucks.
ReplyDeletexoxo